Lifestyle

I only weigh 3 stone at the age of 36 because a rare condition is causing me to starve

A WOMEN is fighting for her life because of a rare condition that left her starving.

Nicolette Baker, 36, weighs only about 3 stone (20kg) because she cannot eat or drink without being tormented by pain.

Nicolette Baker, 36, weighs only three stone due to a rare condition

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Nicolette Baker, 36, weighs only three stone due to a rare conditionCredit: BPM
Nicolette says surgery in Germany is her only chance left

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Nicolette says surgery in Germany is her only chance leftCredit: BPM

She was misdiagnosed with anorexia nervosa all her life, until seven years ago doctors finally figured out the real cause of her inability to eat.

The hopeful 36-year-old is now desperately trying raise money for her “last chance” to have surgery in Germany.

Without it, she said, “I would die because I’m getting weaker and weaker and more and more anemic organs.”

Nicolette said Cornwall Live: “I don’t know if I’ll make it through the day of surgery but I’m living each day and hoping that I can get better has given me something to look forward to.”

Nicolette has an extremely rare disorder called mesenteric artery syndrome (SMAS), which affects an estimated 0.1 to 0.3% of people in the US.

That’s when the first part of the small intestine (duodenum) gets compressed, causing food to accumulate instead of passing through.

Nicolette describes her small intestine as more like a pinched straw compared to a normal-sized garden hose.

The Genetics and Rare Diseases Information Center says symptoms are severely debilitating, including pain, fullness, and vomiting within half an hour of eating.

It leads to weight loss and life-threatening malnutrition, which some sources say is the cause of death in a third of patients.

Bacterial infections can arise from rotting food inside, and the person may be afraid to eat because of the pain.

And, because vital blood vessels are also constricted, Nicolette’s organs don’t get the blood supply they need, she said.

Nicolette can remember being young as a 4-year-old when she started restricting her food intake to ease the pain.

‘I’M SAFE’

“For 25 years, I was treated as a mental patient with an eating disorder throughout my childhood, adolescence and adulthood,” she said.

“I was sent to eating disorder units across the county for months, sometimes up to a year, forced to gain weight on punitive diets that my digestive system simply couldn’t do. manageable.

“I feel utterly humiliated and stripped of my identity during these decades of treatment, not least because I simply cannot inform the experts that I cannot digest food in my body. .

“I am not anorexic because I want to be thin. I simply didn’t want to eat because of the pain it caused me.”

Nicolette recalled, the doctors said she was in pain and flatulence because her stomach is not used to food.

She was admitted to the general hospital for months being forced to eat through a tube, which only made things worse.

I am massively underweight and if not treated I will die from growing weaker and more anemic organs

Nicolette

Nicolette began to experience swelling and pain around her back, which was caused by constipation.

That’s when Nicolette turned to another consultant who, after a CT scan, diagnosed her with SMAS.

The doctor immediately tried an IV tube through the compression site, but Nicolette’s condition was too severe.

She was told the possibility of surgery in the UK had been ruled out due to the risk of sedation of someone in such a critical condition.

With the help of a Facebook SMAS support group, Nicolette was able to get in touch with a compression specialist in Germany who agreed to perform her life-saving surgery in February.

Nicolette has started a Go Fund Me page to help cover the costs of both activities and travel with the support of family and friends.

She wrote on the page: “The surgery cost over £50,000 and did not include my accommodation, flights, travel and medical insurance, Covid tests and a medical chaperone to accompany me. me for surgery.

“I will have to spend six weeks in Germany and due to a serious medical condition I will have to take a taxi and rely on extra support for luggage and transportation.

“But from the bottom of my heart, I want to thank you for reading this. Anything you can contribute to this cause will be greatly appreciated.

“My body is starving and I am struggling to survive with the little nutrition I can get.

“The compression of many of my blood vessels is severely limiting the blood supply to my organs, including my intestines, and affecting my ability to eat and drink.

“I was massively underweight and if left untreated, I would die from getting weaker and weaker and more organs deprived of blood supply.”

“The outcome of the surgery is not guaranteed, but this is my last chance to regain my quality of life,” Nicolette said.

Nicolette describes her small intestine as more like a pinched straw compared to a normal-sized garden hose.

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Nicolette describes her small intestine as more like a pinched straw compared to a normal-sized garden hose.Credit: BPM
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https://www.the-sun.com/health/4413358/woman-weighs-three-stone-rare-condition-starving/ I only weigh 3 stone at the age of 36 because a rare condition is causing me to starve

PaulLeBlanc

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