Celine Dion reveals she was diagnosed with terminal stiff-person syndrome at 54

CELINE Dion has announced that she has been diagnosed with stiff person syndrome – a condition that means her muscles tense up uncontrollably.

In a tearful Instagram video, Celine, 54, told her followers why she had to cancel her upcoming European tour as she came to terms with the extremely rare neurological condition.

Celine Dion was very emotional as she shared the news of her diagnosis


Celine Dion was very emotional as she shared the news of her diagnosis
The star was forced to cancel her upcoming tour


The star was forced to cancel her upcoming tourPhoto credit: AFP

There is currently no cure for the condition, which can leave sufferers as “human statues” who sometimes cannot walk or speak.

Canadian superstar Celine told her fans she is trying to do everything she can to minimize symptoms.

She explained: “Hi everyone, I’m sorry it took me so long to get back to you. I miss you all so much and can’t wait to get on stage and speak to you in person.

“As you know, I’ve always been an open book and I wasn’t ready to say anything before, but now I’m ready.

“I’ve struggled with health issues for a long time and it’s been really difficult for me to face my challenges and talk about everything I’ve been through.

“I was recently diagnosed with a very rare neurological disorder called Stiff Person Syndrome, which affects one in a million people.

“While we’re still learning about this rare condition, we now know it’s at the root of all of my cramps.”

She continued: “Unfortunately, these cramps affect every aspect of my daily life, sometimes causing difficulty in walking and not allowing me to use my vocal cords to sing in the way I’m used to.

“It pains me to tell you today that this means I will not be ready to resume my tour in Europe in February.”

The star went on to say that she’s working with a “great team of doctors” to get better.

“All I know is singing, that’s what I’ve done my whole life and it’s what I love to do the most,” she said.

“I miss you so much. I miss seeing you all on stage performing for you guys.

“I always give 100 percent when I do my show, but my condition now allows me to give that to you now.”

She concluded by saying that her main goal now is to focus on her health.

Fans first became concerned about Celine’s health earlier this year when she canceled the North American dates of her Courage world tour from March 9th to April 22nd.

She previously had to cancel the start of her comeback residency in Las Vegas after suffering muscle cramps.

Celine is one of the most famous singers in the world


Celine is one of the most famous singers in the worldPhoto credit: Getty

What is stiff person syndrome?

Stiff Person Syndrome, or SPS, is a condition caused by persistent convulsions.

This usually affects multiple muscles, most notably the lower limbs, experts at University College London say.

Most people who develop the disease are diagnosed between the ages of 40 and 60.

It is a neurological disorder with characteristics of autoimmune diseases.
The first signs would be intermittent spasms, which then become continuous.

Other symptoms are:

Minor sensory stimuli (more sensitive to sound, light, and touch)
severe cramps

Impaired breathing (in advanced cases).

The experts said that cramps don’t usually occur during sleep.

How is it treated?

In most cases, people with SPS respond to high doses of diazepam, which is often used as an anti-anxiety medication.

Painkillers will also improve symptoms, but they will not cure the disorder.

Many people with SPS will experience falls because they lack defensive reflexes, experts at the National Institute of Neurological Disorders and Stroke added.

https://www.the-sun.com/entertainment/6869611/celine-dion-incurable-stiff-person-syndrome/ Celine Dion reveals she was diagnosed with terminal stiff-person syndrome at 54


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